Yea you read this right. It’s my journey towards disease. Before I talk about my path towards healing myself, I really wanted to discuss everything that led to my disease(s). I consider Interstitial Cystitis (IC) “my disease” although I have others such as Pelvic floor dysfunction and fibromyalgia, I like to think of IC as the mother of all ailments that I experienced.
First of all I was the girl who was ALWAYS sick. I had asthma, bad allergies, and I always had a cold or some sort of viral infection. I didn’t eat well, never really ate my veggies. I ate lots of junk food and lived true to the university student stereotype. Not to mention I was always stressed out! Not sure if it’s because I am a Scorpio, my genes or my Egyptian blood. But that’s a deadly combo!
Rewinding to the summer of 2011, I had just graduated university, I was under a lot of stress, my uncle just lost his battle with cancer and I had my heart broken. As a 21 year old this felt like the end of the world to me and I was so stressed out that I lost feeling in my hands. They were numb 24/7! Pretty scary stuff. A few months after I get a horrible Kidney infection, followed by multiple UTIs. After months I stopped testing positive for UTIs however I had the same symptoms- regardless of testing negative doctor’s kept prescribing me antibiotics. At the time I didn’t what probiotics were, had a very very sad diet, and was stressing out about my health situation. Anyone who is being told by doctor’s there is nothing wrong with them when they are in pain will stress out at this point even if they are the most mellow person on earth. I then got a diagnosis of IBS (irritable bowel syndrome).
So let’s sum it up so far (high stress, bad diet, lots of meds and NO diagnosis)
After moving from doctor to doctor and antibiotic to antibiotic. I finally met the man I will be forever grateful to. My urologist who in 2014 (three years after my symptoms began) gave my diagnosis of Interstitial Cystitis.
Ok so now I have this chronic disease with a scary name. The only resources I was given were that it’s something that can’t be cured and the medication might or might not work for me. I obviously felt like there is no light at the end of the tunnel. I blamed myself day and night for creating my disease by being emotionally unwell, by eating such a horrible diet and by not figuring it out sooner. If you are in the same boat, you know that this can be a horrible viscous cycle. This is why I created this blog, to help people who are in this dark place or who are headed to this dark place see the light at the end of the tunnel, to share my experience, to educate you, learn from you and share my healing journey with you.